http://danvillesanramon.com/square/print/2010/09/30/bingo-night-friday-to-help-parents-of-children-with-rare-birth-defect


Town Square

Bingo night Friday to help parents of children with rare birth defect

Original post made on Sep 30, 2010

A Danville mom is using her experience -- a daughter born with a rare birth defect -- to raise awareness and money to help out others with the same trouble. Elizabeth Nelson's daughter was born with Congenital Diaphragmatic Hernia (CDH), which occurs in one of 2,500 births; only 50% survive. To help out other families with CDH babies, Nelson is holding a charity Bingo Night this Friday at the Woman's Club, 1401 Danville Boulevard in Alamo.

Read the full story here Web Link posted Wednesday, September 29, 2010, 6:34 PM

Comments

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Posted by Derek
a resident of Danville
on Sep 30, 2010 at 12:03 pm

We had to stay just a week, renting a three bedroom unit down Parnassus from UCSF, and while it seemed reasonable at the time (especially by compare to some of the obscene hotel prices in SF and other large cities), staying for months would have made a serious dent in our bank account.
Our daughter had surgery at UCSF and is doing fine, but I have to wonder- if you two Danville residents had trouble, imagine being an actual poor person. Someone who could never dream of living near here. My hope is that your non-profit will look toward helping actual low income parents, not residents of wealthy areas like Danville. I'm sorry if I seem snide and I do wish your daughter well. People need to understand that long term survival figures are typically calculated by stats from all 50 states. UCSF has doctors who are much above the curve in congenital defect repair, be it heart or other body parts, and I am quite sure their success rate is well above 50% for the children they treat. So every parent would like to improve their child's odds, no matter where they live, by getting to the best surgeons.


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Posted by Colleen
a resident of Danville
on Sep 30, 2010 at 5:51 pm

What a great idea! My oldest son(now 3) had two surgeries at UCSF and we were so happy to be in such capable hands with some of the best surgeons and students around. I wish you luck at your event.